Silly Yaks!
It's confirmed! Our eldest child is a Silly Yak! After meeting with Dr. Berry this morning to discuss the results of Will's endoscopy. It was, as he said, 'positively conclusive that William has Celiac Disease'.
As I mentioned to my Mom and Dad when I called them this morning, it felt pretty anti-climatic. See, I did not realize that when our pediatrician in Salt Lake told us that his blood work determined 'celiac' that it wasn't 100% conclusive. Pretty darn close though. Will's blood work showed that he was measuring 13.6 on his tTG/tTA (celiac sprue tests) when 7.0 or LESS was normal for his age. So I immediately went to the library to get books on what Celiac was. Then I bought books, stickers, shirts, more shirts, buttons, magnets - you name it!
So when he confirmed it with me today, I think he was thinking that he would need to give me tons of information. I was pretty clear that the news he gave me was better than learning that Will didn't have celiac. That's not to say that I wouldn't be THRILLED if Will didn't have it. However, with all the symptoms he has I am glad that it is something we can deal with versus something that we don't understand or is harder to live with.
We will be sending more information out to all of our family over the next month or two to better explain Celiac disease and set our expectations. It will be vital that everyone understands what he cannot eat.
Eric and I feel good about moving forward and starting to live gluten-free. We've got lots of resources. And if you're wondering what to get us for Christmas...think GLUTEN FREE!
Labels: Celiac, Developing, Will
1 Comments:
My husband has celiac and we've been living gluten free for about 5 years now. Not too much fun at first but now creating really good recipes has become a challenge and an addiction:) Sounds like you're going to have no problem figuring out the whole gluten free life style.
I have a fabulous pumpkin bread recipe. It's stuffed with cream cheese and yummy whether it's straight from the oven or out of the fridge the next day. Shoot me an email if you'd like it. I also have a great banana muffin recipe that my kids love. paanlar@msn.com
My name's Pam - very nice to meet you:)
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